|
Help in Finding the Right Resource
In our 23 years of working with breast cancer survivors and medical and support communities, we’ve maintained a comprehensive list of resources to save others the homework. Click on a category to begin, then click on the name of the organization to take you directly to their website.
ADVOCACY
- Cancer Action Network: American Cancer Society
"ACS CAN Wisconsin gives ordinary people extraordinary power. Our volunteer advocates are empowered to influence lawmakers to enact policy change that saves lives. Together, we can eliminate cancer as a major health problem in Wisconsin and across the nation."
- Cancer Policy Institute
"The Cancer Policy Institute at the Cancer Support Community advances our mission to ensure that all people impacted by cancer are empowered by knowledge, strengthened by action and sustained by community.
The cancer landscape today is a complex and changing environment. Advancements in research are helping people live longer, fuller lives with cancer, and social and emotional care has been recognized as a necessary component of complete cancer care. The 2008 Institute of Medicine Report, "Cancer Care for the Whole Patient: Meeting Psychosocial Health Needs" has linked positive social and emotional support to better patient outcomes through the cancer experience. This landmark report has defined the gaps in social and emotional care and has identified community-based resources as a solution."
- Emolden WI
"EMBOLDEN means to impart boldness or courage : to instill with boldness, courage, or resolution enough to overcome timidity or misgiving. Embolden WI is here to serve as a home for innovative health equity and civic health advocacy projects. We envision healthy, vibrant, equitable, and socially just communities and to achieve this, we are here to amplify and catalyze programs and initiatives to improve health outcomes, health equity, and civic health."
Because at the end of the day, policy should happen WITH us and not TO us!
- National Breast Cancer Coalition
"We combine the power of advocacy, education, policy, and research to unite around one goal: ending breast cancer."
- National Coalition for Cancer Survivorship
"NCCS’ mission is to advocate for quality cancer care for all people touched by cancer. Founded by and for cancer survivors, NCCS created the widely accepted definition of survivorship and defines someone as a cancer survivor from the time of diagnosis and for the balance of life."
- Susan G. Komen
"In 2022, nearly 44,000 women and men in the U.S. are expected to die from breast cancer, with the majority of these deaths resulting from metastatic breast cancer. Susan G. Komen® is committed to doing everything it can to change that unacceptable reality, including mobilizing the voices of advocates to achieve lasting change through sound public policy. "
- Wisconsin Breast Cancer Coalition
"The Wisconsin Breast Cancer Coalition brings passionate Wisconsin voices together to stand up and speak out about breast cancer through:
Legislation – Influencing policymaking
Education – Spotlighting critical breast cancer issues
Collaboration – Empowering through strategic alliances"
BREAST CANCER INFORMATION & RESEARCH
- American Breast Cancer Foundation
"The American Breast Cancer Foundation serves as the connection between those with a compassionate heart to give and those with the courage to seek help."
- American Cancer Society
"The American Cancer Society (ACS) is a nationwide, community-based voluntary health organization. The ACS offers a variety of services and programs for patients and their families, helping people get well, stay well, by finding cures, and by fighting back. The telephone number connects you to Reach to Recovery a program that supports breast cancer patients before, during, and after treatment."
- American Institute for Cancer Research
"We champion the latest and most authoritative scientific research from around the world on cancer prevention and survival through diet, weight and physical activity, so that we can help people make informed lifestyle choices to reduce their cancer risk."
- Breast Cancer Research Foundation
"Our mission is to prevent and cure breast cancer by advancing the world’s most promising research."
- Breast360.org
"Information about breast issues, written by breast surgeons"
- Breastcancer.org
"Breastcancer.org is dedicated to providing the most reliable, complete, and up-to-date information about breast cancer. Their mission is to help women and their loved ones make sense of the complex medical and personal information about breast cancer, so they can make the best decisions for their lives."
- CancerCare
"Professional oncology social workers provide free emotional and practical support for people with cancer, caregivers, loved ones and the bereaved."
- Inflamatory Breast Cancer Research Foundation
"The Inflammatory Breast Cancer Research Foundation is dedicated to researching the cause of Inflammatory Breast Cancer (IBC), an advanced and accelerated form of breast cancer usually not detected by mammograms or ultrasounds."
- Living Beyond Breast Cancer
"Living Beyond Breast Cancer is a national nonprofit that connects people with trusted information and a community of support."
- Lobular Breast Cancer Alliance
"As the only organization in the US dedicated to Invasive Lobular Breast Cancer (ILC), LBCA’s mission is:
To make all who are touched by ILC aware of its unique characteristics and the critical need for more ILC research; to be the go-to source for information on ILC studies, clinical trials and educational tools; to foster partnerships among patients, scientists, clinicians, and breast cancer organizations to increase dialogue about ILC and research advocacy; and to fund vital ILC research."
- National Breast Cancer Foundation, Inc.
"National Breast Cancer Foundation was founded in 1991 by breast cancer survivor, Janelle Hail. She was diagnosed with breast cancer in 1980 at the age of 34. At the time of her diagnosis, there was little information about the disease, and she was forced to make a decision about her health with few options."
After her treatment, Janelle made a commitment to help women around the world by educating them about breast cancer and the importance of early detection.
- National Cancer Institute
"Science-based information you can trust"
- Patient Resource LLC
"Patient Resource offers education, written to enlighten and empower cancer patients and their loved ones throughout their care continuum. We strive to offer hope and practical support to people when they need it the most. All guides are available free of charge."
- Sharsheret
"Sharsheret’s model of online and telephone-based programming enables us to continue to serve our community and to meet the recent increase in demand for our life changing and lifesaving services. We provide much needed emotional support, mental health counseling, critical education, and financial subsidies. Sharsheret cultivates community by bringing together women, families, caregivers, healthcare professionals and others through national webinars offering expert medical information, healthy living opportunities, and Jewish spirituality experiences for thousands of Jewish women facing breast cancer and ovarian cancer in our communities."
- Susan G. Komen® Wisconsin
"Susan G. Komen® Wisconsin is a statewide resource for women who need breast cancer screening, diagnostic and support services."
- Triple Negative Breast Cancer Foundation
"We are a credible source for triple negative breast cancer information, a catalyst for science and patient advocacy and a caring community with meaningful services for patients and their families."
- WI Comprehensive Cancer Control (CCC) Program
"The WI Comprehensive Cancer Control (CCC) Program serves as the state's cancer prevention and control program that promotes the implementation of the WI CCC Plan. The WI CCC Program serves as the facilitator for the Wisconsin Cancer Council and coordinates the development of the WI CCC Plan. As a member of the Wisconsin Cancer Council, the WI CCC Program shares in the implementation and promotion of the WI CCC Plan with its fellow Wisconsin Cancer Council members."
- Wisconsin Women's Health Foundation
"The Wisconsin Women’s Health Foundation’s mission is to innovate, impact, and improve women’s health throughout the state."
CAREGIVING/FAMILY SUPPORT
- Bright Spot Network
"Bright Spot Network provides young cancer survivors who are parents of small children with a safe space for individual and familial healing, recovery, and reconnection.
We focus on young parents and guardians caring for young children at the time of diagnosis, including those diagnosed during pregnancy."
- Caregiver Action Network
"Caregiver Action Network (CAN) is the nation’s leading family caregiver organization working to improve the quality of life for the more than 90 million Americans who care for loved ones with chronic conditions, disabilities, disease, or the frailties of old age. CAN serves a broad spectrum of family caregivers ranging from the parents of children with special needs, to the families and friends of wounded soldiers; from a young couple dealing with a diagnosis of MS, to adult children caring for parents with Alzheimer’s disease. CAN (the National Family Caregivers Association) is a non-profit organization providing education, peer support, and resources to family caregivers across the country free of charge."
- Cleaning for a Reason
"Cleaning for a Reason provides free home cleaning to patients battling cancer. When cancer makes life at home difficult, our trusted network of residential cleaners, cleaning industry volunteers, and community volunteers come together to support cancer patients and their families."
- Lotsa Helping Hands
"Lotsa Helping Hands is a private, web-based caregiving coordination service that allows family, friends, neighbors, and colleagues to create a community to assist a family caregiver with the daily tasks that become a challenge during times of medical crisis, caregiver exhaustion, or when caring for an elderly parent."
- Meal Train
"Meal Train is for everyone who could use some help during common life events.
New Baby
Illness
Surgery
Loss
Adoption
Deployment
New Neighbor
Anyone"
CLINICAL TRIALS
- Breast Cancer Trials
"BreastCancerTrials.org (BCT) is a non-profit service that encourages individuals affected by breast cancer to consider clinical trials as a routine option for care."
EMOTIONAL SUPPORT
- ABCD: After Breast Cancer Diagnosis
"ABCD: After Breast Cancer Diagnosis was founded by a group of women – led by Melodie Wilson – who realized that having breast cancer is about much more than biopsies, surgery and chemotherapy. Most of ABCD’s founders are breast cancer survivors who discovered that the most valuable information and support came from others in similar life circumstances with similar experiences with the disease. Not everyone diagnosed with breast cancer knows where to find that kind of help. That’s where ABCD comes in."
- Breast Friends
"Breast Friends is committed to supporting individuals facing breast cancer by providing relevant, accessible, and inclusive assistance throughout their journey. We are here to help you navigate this challenging path with support and understanding."
- Gilda's Club
"Not only does Gilda's Club offer support for those with cancer, but it also provides support for the entire family throughout their entire journey with cancer."
- Living Beyond Breast Cancer (LBBC)
"We provide programs and services to help people whose lives have been impacted by breast cancer. Our goal is to provide information, community and support that you can trust, is easy for you to access and respectful of you and your situation. All our resources are carefully and frequently reviewed by some of the country’s leading healthcare experts and informed by people living with breast cancer. "
- MyBCTeam
"MyBCTeam is a free social network that makes it easy for you to:
Get the emotional support you need from others like you, and
Gain practical advice and insights on managing treatment or therapies for breast cancer"
- SHARE Cancer Support
"We are breast and ovarian cancer survivors and we're here to help you. We know what it's like to have early stage, recurrent, and metastatic disease. If you've been diagnosed with breast or ovarian cancer, or if you simply want to know more about these diseases, we can help."
FINANCIAL/LEGAL INFORMATION
- Cancer Financial Assistance Coalition
"CFAC is a coalition of financial assistance organizations joining forces to help cancer patients experience better health and well-being by limiting financial challenges, through:
1. Facilitating communication and collaboration among member organizations;
2. Educating patients and providers about existing resources and linking to other organizations that can disseminate information about the collective resources of the member organizations.
3. Advocating on behalf of cancer patients who continue to bear financial burdens associated with the costs of cancer treatment and care."
- Health Well Foundation
"Our Mission: To reduce financial barriers to care for underinsured patients with chronic or life-altering diseases."
- National Association of Free Charitable Clinics
"Building healthy communities for all through quality, equitable, accessible healthcare."
- Patient Access Network Foundation
"We accelerate access to affordable, equitable healthcare through financial assistance, advocacy, and education."
- The Pink Fund
"Pink Fund provides financial assistance for up to 90-days for non-medical cost-of-living expenses for breast cancer patients in active treatment*, so they can focus on healing, raising their families, and returning to the workplace."
- United Breast Cancer Foundation
"United Breast Cancer Foundation's mission is to make a positive difference in the lives of those affected by breast cancer. Together, we are making a real difference."
FREEBIES
- Breast Cancer Feebies
"Help for the body, soul and pocketbook — when you need it most!"
- Chemocessories
"Warm hearts, lift spirits, boost confidence and provide a smile one accessory at a time."
- HOPE Kit
"HOPE Kits are filled with items that breast cancer patients have told us are soothing and helpful while going through the difficulties of treatment."
- Hope Scarves
"Supporting people facing all types of cancer through scarves, stories, and research."
- Unite for Her Wellness Program
"Unite for HER is a 501(c)3 national nonprofit organization that supports breast cancer and ovarian cancer patients by providing integrative therapies, services, education, resources, and support at no personal cost."
GENETICS
- Basser Center for BRCA
"The Basser Center for BRCA is the first comprehensive center for the research, treatment, and prevention of BRCA-related cancers. These hereditary mutations affect both men and women and can be passed down from either parent. BRCA mutations can increase lifetime risk for cancers including male and female breast, ovarian, pancreatic, prostate and melanoma. The Basser Center can help you learn more about hereditary cancer risk."
- beBRCAware.com
"Knowing if you have a mutation in one of your BRCA genes, like you know your breast cancer subtype, can make a difference in your treatment if you have triple-negative breast cancer (TNBC) or hormone receptor (HR)-positive breast cancer. Ask your doctor about getting tested to learn your BRCA status."
- FORCE-Facing Our Risk of Cancer Empowered
"FORCE is the only national nonprofit organization devoted to hereditary breast and ovarian cancer. Our mission includes support, education, advocacy, awareness, and research specific to hereditary breast and ovarian cancer. Our programs serve anyone with a BRCA mutation or a family history of cancer."
HOME CARE & HOSPICE
- Agrace HospiceCare: Wisconsin
"Since 1978, Agrace HospiceCare has been a nonprofit, community based hospice dedicated to providing expert physical, emotional and spiritual support to patients and families dealing with life limiting conditions. Agrace HospiceCare is nationally recognized for the comprehensive hospice services we provide in patients' homes, the Agrace HospiceCare inpatient unit and skilled nursing and assisted living facilities throughout south central Wisconsin."
- National Association for Home Care & Hospice
"The National Association for Home Care & Hospice (NAHC) is a nonprofit organization that represents the nation's 33,000 home care and hospice organizations. NAHC also advocates for the more than two million nurses, therapists, aides and other caregivers employed by such organizations to provide in-home services to some 12 million Americans each year who are infirm, chronically ill, and disabled. Along with its advocacy, NAHC provides information to help its members maintain the highest quality of care and is committed to excellence in every respect."
MASTECTOMY/RECONSTRUCTION
- My Hope Chest (funding reconstruction)
"...filling the gap in breast cancer treatment, providing reconstructive surgery and breast cancer financial assistance for uninsured and underinsured breast cancer survivors. "
- Not Putting on a Shirt (going flat)
"Women facing mastectomy deserve full disclosure of all of their reconstructive options, including aesthetic flat closure, and to have their informed consent respected."
METASTATIC BREAST CANCER
- MBC Connect
"MBC Connect is a patient experience registry where you can share info about your diagnosis and treatment history to help advance research and get potential matches to clinical trials."
- Metastatic Breast Cancer Alliance
"The mission of the Metastatic Breast Cancer Alliance is to amplify our collective efforts through collaboration & innovation to improve the lives of people living with metastatic breast cancer."
- Metavivor
"METAvivor is the only US non-profit that awards peer-reviewed research grants exclusively for metastatic breast cancer."
NUTRITION & PHYSICAL WELLNESS
- Academy of Nutrition & Dietetics
"The Academy of Nutrition and Dietetics offers information on nutrition and health, from meal planning and prep to choices that can help prevent or manage health conditions and more."
- LiveStrong
"Our leaders are determined and experienced. The fight against cancer is personal for many of them, and they’ll never stop working on behalf of survivors everywhere."
- Oncology Nutrition
"Optimizing the health of persons with cancer and cancer survivors and contributing to cancer prevention efforts through food and nutrition."
TRAVEL ASSISTANCE
- Corporate Angel Network
"Corporate Angel Network (CAN) is a 501(c)(3) nonprofit organization whose mission is to help cancer patients access the best treatment centers in the United States by arranging free travel on corporate aircraft, including both turbofan-powered and turbo-prop powered aircraft. Whether a patient is traveling for surgery, clinical trial, or a second opinion, CAN aims to reduce a patient’s physical, emotional and financial stress by providing a seat on a corporate flight."
- Joe's House
"Joe’s House is not an actual house, but a nonprofit organization that helps cancer patients and their families find a place to stay when traveling away from home for medical treatment. "
- Mercy Medical Angels
"Removing the Barrier to Medical Care with Free Medical Transport Services."
WORKPLACE
- Cancer + Careers
"Mission: Cancer and Careers empowers and educates people with cancer to thrive in their workplace, by providing expert advice, interactive tools and educational events."
YOUNG SURVIVORS
- Genevieve's Helping Hands, Inc.
"Genevieve's Helping Hands Charity is a 501c3 nonprofit dedicated to supporting young mothers in treatment for breast cancer to help them live their lives to the fullest. We provide peer, caregiver and nutritional support and offer assistance to find financial aid."
- Stupid Cancer
"Stupid Cancer's mission is to help empower everyone affected by adolescent and young adult (AYA) cancer by ending isolation and building community. Stupid Cancer offers a lifeline to the adolescent and young adult cancer community by providing age-appropriate resources to help navigate treatment and survivorship on your own terms."
- Tigerlily Foundation
"Tigerlily Foundation is a national women’s health and oncology organization providing education, awareness, advocacy and hands-on support to young women (15-50) before, during and after cancer."
- Young Survival Coalition
"Young Survival Coalition (YSC) strengthens the community, addresses the unique needs, amplifies the voice and improves the quality of life of young adults affected by breast cancer, locally, nationally and internationally."
|
